Bill and I had a long talk with Jeff's neuropsychologist about his condition. After reviewing his previous psychological tests it is her opinion that Jeff's frontal temporal lobe dementia is progressing very quickly as is his ALS.
It was our hope that we could get Jeff back to where he was three weeks ago before he was admitted to the hospital with pneumonia.
Our reality is that his disease has progressed far beyond that point and that his bout with pneumonia has left him weak.
If there is good news here it is that Jeff doesn't have the ability to total understand the severity of his situation. He is only able to react to his immediate surroundings and circumstances. He is a lot like an infant whose needs are immediate. He is often confused and agitated. It is our hope that he will be more comfortable in the familiar surroundings of home where there is an emotional attachment.
Our goal now is to just get him home.
As Jeff's mother I pray that his days here on earth are short and that God's timing is kind. I know that heaven awaits him where his body and mind will be strong and whole. I pray for relief from this prison he lives in here on earth.
Right now my biggest concerns are for Jeff's eight and ten year old sons. I worry about what all this will do to them. My prayer is that we are somehow able to prepare them for the days and weeks ahead. I pray that Cherene will know her limitations and accept the help she will need.
Sorry for tone of this post.
This is our reality.
Encourage one another,